There are a Billion and one things that are Heartbreaking while wittnessing the decline of a family members Health (both physically and mentally) but for me, I'd have to say the toughest is having been taught by doctors and therapists the signs to pay attention for, that are inducators more of the Brain Tissue has died off. Seeing the continual affects are beyond disheartening; the confusion and disorientation that comes along for the ride, (which stems fear for them) is nothing less than its own form of torture for our Loved one. Although we do our best to assure them we're here for the long haul, it's not always enough and their struggle deepens as it worsens. We continue keeping our Heads bowed in prayer (with Tear filled eyes) asking for guidance and strength, as we know all to well that not only is tomorrow never a promise, but neither is the following moment. We, sometimes, fall into a false sense of safety when it's been "smooth sailing" for a bit (that we know all to well is a farse) but the comfort it brings us (however temporary) is if nothing else the momentary relief our own emotions need. Normalcy~
Caring for someone who's illness consist of a progressive mental ailment, can (sometimes) feel more challenging than caring for their physical needs. Some of their comments exhibit signs that the illness is taking a turn for the worst. You may have just offered them food and they decline claiming not to be hungry. Then, once you've begun to eat something for yourself - they become agitated and hurt feelings, commenting how no one cares if they're hungry. If this back and forth continues, the chances are great that frustration (for both parties) is inevitable. You realize it may be beneficial to wait to eat at a later time.
It's of a definite benefit to refrain from trying to remind them of previous conversations, as chances are they won't remember and accuse you of looking for excuses. So, just proceed forward in a positive light and assure them you are there for them. Remember, they're suffering is constant and their body and mind are exhausted from fighting full throttle to sustain there life as best they can. #patience#love#understanding#empathy#sympathy#care#compassion#memories#effort#energy#trials#tribulations#victory#celebrate#milestones#focus commitment #nogobacks
I wasn't going to post this. I changed my mind because #knowledge is #power and what we didn't know was hurting our 1 year old #son Isaac. #Sympathy is not needed, #prayer is. Isaac has a rare form of #cancer called #Neuroblastoma , and we found out today that it is high risk. I am posting this mainly to say to #parents and #family FOLLOW YOUR GUT. If your #kid is fighting #fever on and off for two months ask the doctors for more than Tylenol, maybe blood work. If his stomach seems firmer than usual or there is pain when pressure is applied mention it to your #doctor ask for imaging . Tumors can cause anemia; which can result in low #energy and pale skin. You know your child and probably have an idea if something's not right. #cancersucks#seattle#survivor in the making... if you care to know, follow Isaac's #story here https://www.caringbridge.org/visit/isaacwilliams