I've been having more increased abdominal pain & reflux lately. This morning, I went in for an upper endoscopy & found that things look good from a Crohn's standpoint on my upper end. However, it wouldn't be me without having some sort of finding.
I am the owner of a brand new hiatal hernia. I can't totally remember what Dr.Schwartz said, but grandmother said it was a small one. So for now, all's well. #StatusQuo
All dem pipes, y'all.
IV Pepcid. IV zofran. IV hydrocortisone. IV Benadryl. Liquid Tylenol down the j-tube. Ativan crushed & down the j-tube. 25g ivig. One liter of saline. + Vivonex tube feed down the j-tube.
My own mortality is always in my face, but never more so than the day each week I'm in this clinic receiving a blood plasma derivative from about 1,000 different people. They give a small amount of their time during the day so that I may have more time in this world. Small actions change things in big ways.
Thank you, plasma donors. #tubesdaytuesday#giveblood#donateplasma
Thank God for IV fluids at home. Yesterday, I wasn't feeling great, but assumed I was just tired from doing so much on Sunday & Monday. I met up with @rexomatic_zebomatic for donuts & then we went to the Newseum. Which, btw, if you're ever in DC, it's a MUST SEE. Anyway, after that, I took her home & Landon & I headed back home. I was not doing well. Like...really really really not well. It got worse through the evening & night. I won't go into detail, but I've officially made Wynn's list of "can't ever get that out of my mind". It was just awful. I've spent my entire day lounging around & trying to recoup. I'm currently on liter number two & it's helping so much. I'm praying for a good night sleep & hopefully a return to normal. Whatever that is these days. ♀️ #hydrate
This picture sums up our day perfectly. High energy! I got to finally meet @brittney_michele_1986 & her awesome kiddos! Lost Dog pizza, Panera soup, & fresh baked cookies made this cloudy day inside deliciously fun. We were even able to sneak in a park trip later in the day. This is one of those days to remember when we're old & think, "Those were the good times. We adulted well that day." #InternetFriends
Today's update: I got ivig early this week, very early, plus a hefty dose of iron. My labs on Friday were worse than expected. I could use a unit of blood, but instead of doubling up blood products, we're trying iron first. That usually helps me out quite a bit. Let's hope it does this time, too. My iron was at 17; it should be at least 50. I had some vitamins that were very low as well. Annnnnnnd I need a scope. Happy fall, right? Every year at this time, like clockwork, my body just shuts down. At least it's predictable. ♀️ #TubesdayTuesday
I am SO proud of my little dude. He was this month's Wheels in Motion winner. Faculty nominates a student that exhibits exemplary character, respect, discipline, & leadership. Each month, the White House Rotary Club & WHPD present the student with a new bicycle & helmet. The officer is actually one of his karate instructors! I love that Landon represents the dojo well outside of karate class. Grandmother, his dad, & Shaylie came to watch today. He is so thrilled & thankful to have a brand new bike!! #MyKidIsTheBestEver#NotBiasedAtAll
I made a little detour to Metropolis on my way home from St.Louis yesterday. I've not felt so super & I needed a little inspiration. Thanks to Wynn, I have a little tripod now & was able to just set the timer on the camera, run to the spot, & hope for the best! I think they turned out alright. #IWannaBeSuper
Say hello again to my beautiful shark jaw & serotonin structure! After 8 weeks & 2 days with that awful picc line, we finally broke up on Monday. Never get in a relationship with a picc; they're very high maintenance. My picc line, from insertion point to the tip in my superior vena cava, was 40cm long. That's almost 16 inches long! It felt SO GOOD to be able wash my arm properly again. I've accessed my shiny new port twice this week now & it's working perfectly. #TubesdayTuesday#latepost